Sunday, August 30, 2015

Final Thoughts

We have a really good family doctor.  He's smart and informed and not too condescending by doctor standards.  Because he has such a good reputation, he's popular, meaning he sees a lot of patients, but in rural areas, that's to be expected.  He knows a lot about stroke, but even as good as he is, he's clueless about spasticity. He refers to it as stiffness, as in, "How's that muscle stiffness on your left side? Getting any worse?"

Me: "It's not really muscle stiffness, it's spasticity."
Doctor, ignoring my clarification:  "Still exercising?"

Me:  "Yep, I swim every other day, and the days I don't, I stretch and work out with light weights."
Doctor:  "Good, good.  Does that help with the stiffness?"

Me: "Not really.  In fact, in the short term it makes it worse."
Doctor: "Hmmm.  That's...odd," forgetting that I've explained this phenomenon to him several times before.

Me: "Yes it is."
Doctor: "You saw Dr. ______, the neurologist I referred you to, didn't you?"

Me: "Yes, I did."
Doctor: "Did he have any suggestions to help with the stiffness?"

Me:  "Not really."
Doctor: "Well, that's unfortunate.  Well, if it gets too bad, let me know and I can prescribe a muscle relaxant that might help some," forgetting that we've talked about this before and I've told him I'm not interested in taking a muscle relaxant.

The neurologist he referred me to last year also seemed like a nice guy, but was just as clueless about spasticity.  To check my condition, he watched me walk around his office, then had me sit on the examination table while he tugged on my left arm and leg. Now I have spasticity all up and down my left side, but it's not uniform, and it hardly affects my bicep at all, so it doesn't cause my left arm to fold itself against my chest as with so many other survivors. In fact, what I experience is just the opposite. So when he grasped my left wrist and pulled it toward him, I had to pull back in order to keep from punching him in the solar plexus. "Yes, yes," he said, "I can feel it in your arm." Similarly with my leg, I had to try to keep it bent so that my foot didn't snap up and knock his teeth out. "Yes, you certainly have a lot of spasticity in your left arm and leg," was his conclusion.

I didn't explain to him that he hadn't actually felt my spasticity where it actually was and how it actually affected me, because, really, why bother.  There's no treatment for it, anyway.  He did offer to write me a prescription for Baclofen and another for pain medication, but not wanting to spend the rest of my days stoned, I declined.

Mainly based on Dean's blog, I'm aware that there is a substantial amount of stroke research going on.  But it seems so haphazard, so unfocused and directionless.  It seems much of it covers ground already covered, making no attempt to build on work already done.  There seems to be no plan, and no entity that is providing any overarching perspective so that a coherent  strategy can be developed to solve the myriad unknowns that stand in the way of stroke recovery.  Instead, we have isolated researchers engaging in disconnected research projects, while the stroke organizations take the easy way out and focus on prevention and treatment processes so they can claim nonexistent successes.  I'm sure this approach makes for more fun conventions than would reporting on progress toward solving the complex barriers to stroke recovery. 

I sincerely believe that a group of stroke survivors could provide doctors and researchers some of the basic information about stroke that could help inform their research efforts.  But this is never going to happen. Doctors and researchers actually listening to advice from people who have had strokes?  Why the thought of such a thing is inconceivable.  What might happen after that?  Medical professionals paid for results instead of as an entitlement for having a medical degree?  Chaos, I tell you, the upending of the natural order.

So the state of stroke recovery seems hopeless, with the only useful information being provided by Dr. Google and the many smart and informed stroke bloggers.  I admire you all, but my time as one of you has come to an end.  My blog was about someone who had a stroke who was working.  But at some point in the last four years I became someone who was working who had a stroke - a subtle but significant difference.  There are still contributions I want to make and goals I want to reach in the time I have left.  One of my goals is to get back to the blog I had started prior to my stroke.  It's called The Liberal Capitalist, so drop by there and say hello sometime.  Be well, do good work, etc., etc.



18 comments:

  1. Jim, you mean your neurologist didn't know about these interventions for leg spasticity? http://www.oc1dean.blogspot.com/2015/01/s2-3-improvements-in-spasticity-and.html?
    The anal probe?
    http://oc1dean.blogspot.com/2015/03/apparatus-for-reduction-of-spasticity.html
    I have come to the conclusion our doctors are totally worthless.

    ReplyDelete
  2. Thanks for the information, but I think I'll stick to bourbon.

    ReplyDelete
  3. I am glad for you to be feeling ready to move on.

    I am rarely on my blog now because I am not too sure what to do with it. I too am a person who is working who had a stroke. The difference is that I now work with people with disabilities and feel that I have a lot to offer in a related but somewhat different direction. I jump wildly from being an expert in what it is like personally to have a stroke and what it is like to encourage rehab in someone who has had a stroke.

    I will check out your new but old blog!

    ReplyDelete
  4. We here www.essaykings.co.uk all do hope to read your further excellent posts on Liberal Capitalist! We do not want to see you down in the dumps, so...always keep on the top of things!

    ReplyDelete
  5. ALL THANKS TO DR JOHNSON WITH HIS HERB I WAS CURED FROM A TERRIBLE Stroke
    . Is my pleasure to comment on this site and i thank the admin of this site for his/her great work so far. I really don’t know how to thank DR Johnson for helping me my Husband cured for over 20 year of suffering from a terrible Stroke, His Stroke started when He was 49 year i thought is going to end one day but even get worse as days went by,i have tried all western drugs prescribed by doctors but to no avail i lost total concentration,I came across DR Johnson contact through a headline news on internet about how DR Johnson have help so many people to get cured of tinnitus and so many other with similar body problem I contacted him and he told me how to get his herb,few day later he sent me the herbal portion which he take every morning for 21 days, and his medicine was able to restore me back to normal and now am very okay without any side effects whatsoever If you have Stroke, you can contact him on his email address drjohnson958@gmail.com
    Or Text through Whats-App on +16316206721 for help.

    ReplyDelete
  6. WE WELCOME YOU ALL TO DEVANSH HERBAL HEALTH CARE.
    We have Quality Rick Simpson Cannabis oil, all types of cancer cure,insomnia,glaucoma,stroke Diabetes,back pain,we also have the herbs that reduces stress and other illness. We are selling our products at very negotiable and workable prices. Apart from our very magnificent prices, when you buy from us, you are assured of the highest quality and purity available in the market,and we are 100% sure of our herbal product, with a guaranteed discreet courier shipping or a special 24 hours confidential overnight delivery of the product to your address. We respect and value your privacy and will dont share your information with anyone. We offer discreet and Reliable packaging and delivery. -Fast and reliable shipment within 24hours within the US and 48 hours internationally, using courier service. Call or Text::::: +1936-2283-155, Email: devanshherbalheathcare@gmail.com for more information

    ReplyDelete
  7. As a sign of gratitude for how my husband was saved from stroke , i decided to reach out to those still suffering from this.
    My husband was diagnosed of stroke and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he had difficult speaking , and he always complain of muscle weakness and balance disorder . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to stroke . I never imagine stroke has a cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one months he was fully okay even up till this moment he is so full of life. stroke has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony

    ReplyDelete
  8. I was saved from stroke , So i decided to reach out to those still suffering from this.
    I was diagnosed of stroke and it was really tough and heartbreaking for me because my family had spend all money they had, the symptoms were terrible, I had difficult speaking , and he always complain of muscle weakness and balance disorder . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to stroke . I never imagine stroke has a cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and I used it and in one months he was fully okay even up till this moment Am so full of life. stroke has a cure and it is a herbal cure contact the doctor for more info on drjohnson958@gmail.com or Whatsapp him on +1(518) 675-6082 on how to get the medication. Thanks for reading my testimony

    ReplyDelete
  9. ALL THANKS TO DR WILLIAMS FOR THE GREAT DEED HE HAVE DON FOR MY FAMILY.This information will be useful for Epilepsy and stroke patients who is willing to use herbal medicine. My daughter had temporal lobe epilepsy, She had seizure and had a grand mal with rage episode. Our daughter's seizure is constant throughout the day. We had used several medicine which include: Epilim and Keppra, experience seizure control at the cost of serious debilitating side effects. It was during a casual conversation with a friend that I learned about herbal Dr. William on how he help her cure his son from stroke and so many others with different illness,his medicine does not have any side effect.after my daughter have finish taking dr williams medicine I am glad to say that he has been seizure-free since July 2015 after taking William medicine. this a miracle cure?contact him for more detail (drwilliams098675@gmail.com) .
    thanks once again admin for such an informative blog.

    ReplyDelete
  10. As a sign of gratitude for how my husband was saved from stroke , i decided to reach out to those still suffering from this.
    My husband was diagnosed of stroke and it was really tough and heartbreaking for me because he was my all and the symptoms were terrible, he had difficult speaking , and he always complain of muscle weakness and balance disorder . we tried various therapies prescribed by our neurologist but none could cure him. I searched for a cure and i saw a testimony by someone who was cured and so many other with similar body problem, and he left the contact of the doctor who had the cure to stroke . I never imagine stroke has a cure not until i contacted him and he assured me my husband will be fine. I got the herbal medication he recommended and my husband used it and in one months he was fully okay even up till this moment he is so full of life. stroke has a cure and it is a herbal cure contact the doctor for more info on drwilliams098675@gmail.com on how to get the medication. Thanks for reading my testimony

    ReplyDelete
  11. ProSlideshow Particular was professionally intended to work flawlessly within Polished product Genius X. As a generator and change impact, each ProSlideshow Secluded preset can be moved onto media and reviewed progressively. With the distributed parameters found in the Final Cut Pro X Plugins investigator, clients can make facilitate alterations with only a couple of snaps of a mouse.

    ReplyDelete
  12. Contact Dr Johnson to get a permanent cure to Stroke, I once had Stroke for five years, until I contacted Dr Johnson from USA, now am completely cure, I never believed there is a cure to Stroke. contact him him through his E-mail on drjohnson958@gmail.com or text him through whats-app on +1(518) 675-6082

    ReplyDelete
  13. terimakasih untuk informasinya..
    ini sangat membantu, silahkan kunjungi artikel mengenai stroke dan cara pengobatannya secara alami >> http://alwi.my.id/

    ReplyDelete
  14. I recently have some difficult conversations and I did what a lot of people do when they want to know more about something. I googled it. I came across Dr Williams herbal medicine on YouTube so many people thanking him about his good work. I also have stroke. I wasn’t running all over God’s creation with every man I could find but here I am. I have felt bad about myself for so many years now because of my stroke status. I obviously still have some self-accepting to do but I want to thank Dr Williams for everything he have done for my family ,after taking Dr Williams medicine i was completely free from stroke within one month of usage, I think what you are doing is so admirable. you have helped me a lot! I want to definitely reach out to you and thank you for your amazing work. You are a good person, and an extremely talented man. You have helped millions with your herbs, and have really inspired me,and i pray you still continue doing the good work.you can also email him on drwilliams098675@gmail.com for help

    ReplyDelete
  15. It was during my research on HIV/Herpes that I stumbled upon the Hiv/Herpes information; information which is quite easy to find when doing a search for STD on google. I was into conspiracy at the time thought of HIV/Herpes Cured' being a conspiracy was something Ignorance though,I found pretty interesting about herbal medicine. I asked questions about the Herbal cure's on official HIV/Herpes websites and I was banned for doing so by moderators who told me that I was parroting Hiv/Herpes propaganda. This reinforced my belief that there is a cure for Hiv/Herpes Then i found a lady from germany name Achima Abelard Dr Itua Cure her Hiv so I send him a mail about my situation then talk more about it and send me his herbal medicine I drank for two weeks.And today I'm Cured no Hiv/Herpes in my life,I searched for Hiv/Herpes groups to attempt to make contact with people in order to learn more about Hiv/Herpes Herbal Cure's I believed at this time that you with the same disease this information is helpful to you and I wanted to do the best I could to spread this information in the hopes of helping other people.That Dr Itua Herbal Medicine makes me believes there is a hope for people suffering from,Parkinson's,Alzheimer’s disease,Bechet’s disease,Crohn’s disease
    ,Cushing’s disease,Heart failure,Multiple Sclerosis,Hypertension,Colo_Rectal Cancer,Lyme Disease,Blood Cancer,Brain Cancer,Breast Cancer,Lung Cancer,Kidney Cancer,Love Spell,psoriasis,Lottery Spell,disease,Schizophrenia,Cancer,Scoliosis,Fibromyalgia,Fluoroquinolone Toxicity Syndrome Fibrodysplasia Ossificans Progressiva.Infertility,Tach Disease ,Epilepsy ,Diabetes ,Coeliac disease,,Arthritis,Amyotrophic Lateral Sclerosis,Autism,Alzheimer's disease,Adrenocortical carcinoma.Asthma, (measles, tetanus, whooping cough, tuberculosis, polio and diphtheria)Allergic diseases.Parkinson's disease,Schizophrenia,Lung Cancer,Breast Cancer,Colo-Rectal Cancer,Blood Cancer,Prostate Cancer,siva.Fatal Familial Insomnia Factor V Leiden Mutation ,Epilepsy Dupuytren's disease,Desmoplastic small-round-cell tumor Diabetes ,Coeliac disease,Creutzfeldt–Jakob disease,Cerebral Amyloid Angiopathy, Ataxia,Arthritis,Amyotrophic Lateral Scoliosis,Fibromyalgia,Fluoroquinolone Toxicity
    Syndrome Fibrodysplasia Ossificans ProgresSclerosis,Seizures,Alzheimer's disease,Adrenocortical carcinoma.Asthma,Allergic diseases.Hiv_ Aids,Herpe ,Copd,Glaucoma., Cataracts,Macular degeneration,Cardiovascular disease,Lung disease.Enlarged prostate,Osteoporosis.
    Dementia.Lung Cancer, Leukemia Lymphoma Cancer,
    Lung Mesothelioma Asbestos,
    Ovarian Cervical Uterine Cancer,
    Skin Cancer, Brain Tumor, ,Hiv_ Aids,Herpes,Inflammatory bowel disease ,Copd,Diabetes,Hepatitis,Lupus,I read about him online how he cure Tasha and Tara,Conley,Mckinney and many more suffring from all kind of disease so i contacted him . He's a herbal doctor with a unique heart of God, Contact Emal. ... drituaherbalcenter@gmail.com Phone or whatsapp..+2348149277967.

    ReplyDelete